I am the father of two wonderful kids, Molly and Tommy, and I know the worries all parents have, the dreams we have for our children and the fearful moments. Will they fit in with the other kids at school? Are they getting good grades? Am I bringing them up right? I heard a good quote recently, that the good parents are always asking themselves, “Am I doing the right thing for my child?”

I’m not sure how to conclude this blog post except to say I have tremendous respect for those families living with autism. I admire their strength and dedication. Their love for their children is amazing. When families pull together like this it is truly heroic. When I see families like this at Easter Seals Southeast Wisconsin, it makes me more committed to providing services that will lighten the load on such tremendously caring parents and loved ones.

The matter of what exactly goes on in the mind of a dog is a tricky one, and until recently much of the research on canine intelligence has been met with large doses of skepticism. But over the last several years a growing body of evidence, culled from small scientific studies of dogs’ abilities to do things like detect cancer or seizures, solve complex problems (complex for a dog, anyway), and learn language suggests that they may know more than we thought they did.

At the risk of sounding unsophisticated, I have to ask: who cares why our service dogs help us? I’m just grateful they do! And I’m sure Michelle O’Neil, the author of a blog at Bark Magazine, feels the same way. O’Neil’s daughter Riley has autism, and the Bark blog follows the two of them as they train with Jingle, Riley’s new autism service dog.

Day 3: Today we got into the meaty stuff. Behavior disruption! This is the whole point of having a service dog for Riley, to help her with the meltdowns. Eventually, hopefully, Jingle will be able to redirect Riley before the escalation occurs. Today, a 4 Paws staff member indicated she would be role-playing a child crying (which sent Riley running from the room covering her ears before the scene even unfolded). The dogs are taught to nuzzle, to put their head in the child’s lap, or to go “over,” which means putting their whole body across the child’s lap for deep pressure.

Watch Riley meeting Jingle on YouTube and tell me if you think Jingle does her work because she’s smart, or because she’s obedient. And … do you think it matters?

Safeway executives unveiled the 2009 Safeway Foundation’s Empowerment Grant award winners during Easter Seals’ annual convention in Washington, D.C., granting $1 million to expand programs across the country that measurably improve access to services and outcomes for children and adults living with autism and other disabilities.

Now in its second year, the 2009 Safeway Foundation’s Empowerment Grants are awarded to Easter Seals affiliates across the country whose innovative programming truly makes a difference in the lives of people with disabilities, whether through autism services, employment support, inclusive child care, early intervention, medical rehabilitation or respite.

You might remember the post I wrote about Safeway last may, where I mentioned their long-standing commitment to hiring people with disabilities:

Safeway employs more than 10,000 adults with disabilities. You read that right. They hire more than 10,000 adults with disabilities. There are over 1,700 Safeway stores across the United States and Canada, operating under various brand names including Safeway (East Coast, Seattle, Portland, Northern California, Phoenix and Denver), Vons and Pavilions (Southern California and Nevada), Dominick’s (Chicago), Randalls and Tom Thumb (Texas), Genuardi’s (Philadelphia) and Carrs stores (Alaska). Look around the next time you are shopping at one of these stores — it’s likely you’ll find an employee there with a disability. What a welcome sight!

I can tell you firsthand — when you have a disability, it is extremely difficult to convince employers to hire you. Safeway’s commitment has given many adults with autism and other disabilities a career and a means to live independently. Now these new 2009 Safeway Foundation Empowerment Grant awards will support Easter Seals local programs, which will help us reach more families living with disabilities.

I’ve said it before, and I’ll say it again: Thank you Safeway!

This was a special night for Easter Seals Southeast Wisconsin, as we were publicly announcing our merger with Waukesha Training Center. I was so grateful Maurice spoke after I did. Everyone knows there’s no topping Maurice’s inspiring personal story.

Maurice has autism, and when he was a child the system very often considered institutionalizing children with his symptoms. In his speech, Maurice shared his life and a tale of his personal strength, devoted family and the help of Easter Seals Metropolitan Chicago. Today Maurice is a college graduate, and I actually heard a gasp of surprise from the audience as Maurice shared the story of earning that degree. When Maurice’s talk drew to a close, the audience gave him a standing ovation.

Maurice’s personal story spoke to one aspect of our merger, bringing together an array of services:

• Early intervention
• Work services
• Case management
• Adult day and recreation

Families seeking help, hope and answers will find resources and support at Easter Seals. Maurice’s story also speaks to the need for a continuum of services across the lifespan, to give people with all types of disabilities more opportunities for inclusion, access to services, careers and most importantly, choices in their futures!

Thanks, Maurice, for coming to Milwaukee! We want to bring you back to share your story with our work services participants so they can start dreaming of their futures too.

“Within, I would say, a week, I noticed enormous changes,” Ms. Vaccaro said of (her son) Milo, whose autism impairs his ability to communicate and form social bonds. “More and more changes have happened over the months as their bond has grown. He’s much calmer. He can concentrate for much longer periods of time. It’s almost like a cloud has lifted.”

Dr. Melissa A. Nishawala, clinical director of the autism spectrum service at the Child Study Center at New York University, said she saw “a prominent and noticeable change” in Milo, even though the dog sat quietly in the room. “He started to give me narratives in a way he never did,” she said, adding that most of them were about the dog.

The changes have been so profound that Ms. Vaccaro and Dr. Nishawala are starting to talk about weaning Milo from some of his medication.

We’ve all heard stories about dogs and other animals — whether service and therapy animals or family pets — helping their human companions feel better. Who knows? Maybe someday we’ll have scientific evidence that shows just how much interacting with animals affects typical development and health, and whether human-animal interactions have therapeutic and public-health benefits.

The law is scheduled to take effect in February, 2010. Under the legislation, insurance companies will be required to provide up to $36,000 a year for medically-necessary behavioral early intervention for all patients with autism, and with other developmental disabilities, who are under 21 years of age. New Jersey health insurers would provide diagnostic coverage for screening for autism and other developmental disabilities.

The mandate also includes therapeutic services, including any medically-necessary occupational, physical and speech therapy. The law provides up to $36,000 a year, per child, for behavioral, speech, and occupational therapy. Of 15 states with similar requirements, New Jersey is the first to include coverage for other developmental disabilities, too.

This new legislation has autism on people’s minds. I recently attended a political rally where I felt like I was at an autism advocacy rally! A lot of people were talking about autism. I heard more talk about autism at that rally than I have ever heard at a non-autism event. The speakers, the folks at my table (whom I had just met), municipal officials, school board officials, state and county officials, the candidates … everyone was talking about the importance of New Jersey making the diagnosis and treatment of autism spectrum disorders a top priority.

That rally was one of those rare times when I witnessed my professional and personal values mesh with my vision — governing leaders were ensuring that all people are included, and that supports are provided to achieve that goal.

A publication in Pediatrics indicates that 1 in 91 children between the ages of 3 and 17 has an autism spectrum disorder. The story in Pediatrics came out of a report from the National Survey of Children’s Health, and it indicates a clear increase from the 2007 research that found as many as 1 in 150 children had an autism spectrum disorder.

The news of this increase has many people asking why. As for me, I am asking what. What will we do to meet the increased need for services? What will we do to meet the increased need for supports?

Surveillance studies are important. They inform our society about what is happening to our population, and they should inform our society about the needs of our society members. Every day Easter Seals hears from parents who are not able to access services and supports for their children. The two barriers I hear about most often from families are financial barriers and the lack of trained professionals in their communities.

Individuals with autism can and do lead meaningful lives with effective services and supports. Increased prevalence equals increased need. The research has been done. We know that there are more children with autism. This must lead to the logical conclusion that there are more children in need of services and supports.

Remove the barriers to effective services and supports. Our professionals (teachers, childcare workers and therapists) need access to training. Our families need financial support to ensure their children receive quality treatment. Our society funded the prevalence study to find out about how many children have autism. Let us now fund services and supports to meet the needs of those we found.

The book begins with an explanation of what autism is, and what it is not. From there the author explains the diagnostic process and autism treatments. My favorite chapter is the one that answers common questions asked by parents of children with autism. Terms, references and resources are found at the end of every chapter, which helps parents key in on issues one at a time.

I can’t say that this book will take away all the fears and worries parents will have about their newly-diagnosed child, but it sure will help parents know what questions to ask when working with doctors and therapists.

The National Autism Center has released a great resource to help parents and service providers. It’s called the National Standards Project, and it provides critical information about which treatments have been shown to be effective for individuals with ASD.

The project looked at the core characteristics of ASD in children, adolescents, and young adults (those below 22 years of age) and examined and quantified the level of research supporting interventions. Eleven treatments were found to have significant evidence.

The National Autism Center launched the National Standards Project in 2005. The project benefited from the support and guidance of an expert panel composed of nationally recognized scholars, researchers, and other leaders. The culmination of this rigorous multi-year project is the National Standards Report, the most comprehensive analysis available to date about treatments for children and adolescents with ASD.

The National Standards Project will provide guidance, encourage families and service providers to make informed decisions, and promote the use of evidence-based treatments. And with the implementation of these standards, our outcome will be citizens with autism who move into adulthood with increased skills and the ability to contribute their talents to our diverse communities.

Visit the National Autism Center Web site to access a copy of the report.

ABA at Easter Seals Southeast Wisconsin
by Paul Messling

Several months ago I received a forwarded email from my former graduate school advisor at the University of Wisconsin – Milwaukee. He thought a job opening at Easter Seals Southeast Wisconsin might be right up my alley. After reading the posting for Autism Services Manager, I printed it out and left it for my wife to read. Her response, scrawled in bold letters across the top of the page, was WHAT ARE YOU WAITING FOR? Not being one to argue, my resume went out shortly after that.

Upon reflection, I guess I had already been waiting over eight years for this opportunity. After completing my undergraduate degree in psychology, I finally found direction in 2001 when I began working for a local autism services provider. After receiving a Masters Degree in behavior analysis, I got my Board Certified Behavior Analyst (BCBA) credentials in 2005.

The minute I arrived for my interview at Easter Seals Southeast Wisconsin I really felt the kind of pioneering spirit I was looking for. The opportunity to build a new program based upon Easter Seals longstanding tradition of community service left me in awe.

So where does this leave us now? Fortunately in Wisconsin we have a state-funded program that provides some resources for autism treatment. Marketing strategies and materials are being developed, referral sources are being sought out, grants ideas are being developed for teaching materials, and we are preparing to hire our first therapists in the near future. Once that occurs our program will focus on the Verbal Behavior Approach to ABA and errorless teaching with a special emphasis on therapist and caregiver training using video feedback.

I am very grateful to have this opportunity with Easter Seals. In a brief period I’ve already seen this organization’s unwavering commitment to helping individuals with disabilities. I look forward to translating that sentiment into services for children on the autism spectrum in Wisconsin, so each family we meet leaves better for the experience.