Easter Seals affiliates in other states are hoping to help pass this type of legislation so that people with autism can benefit from our expertise in diagnosis and screening, and when necessary, from our autism services.

The Act creates a special governmental joint venture between the department of health, the department of elementary and secondary education, and the department of human services to promote public awareness of and the use of early intervention services in regard to autism spectrum disorder.

The legislature specifically wanted to reinforce screening for children who are uninsured and/or underinsured through the Rhode Island department of health with assistance from experts, service providers and parents and to provide appropriate testing and screening models and to create a case management system to properly catalogue such diagnosis.

The department of education will develop a continuing education certificate in autism spectrum disorders at Rhode Island College.

A number of states are looking at similar legislation in their upcoming sessions, beginning in January, to promote awareness, screening and diagnosis, and professional development.

Easter Seals is proud to be part of Advancing Futures for Adults with Autism (AFAA), a national consortium seeking to create meaningful futures for adults with autism. At the town hall meeting this Friday, over 1,000 people in 15 cities will join the discussion to make recommendations on these important issues. Caregivers, advocates, elected officials, family members, and adults with autism will participate, and we hope you will, too!

The event will be orchestrated from a central hub in Chicago, and a webcast will allow us to hear ideas from participants at satellite sites all over the country. The unprecedented scale and diversity of the AFAA Town Meeting will attract national attention and build momentum around addressing the needs of adults with autism. Easter Seals is hosting the satellite sites in Long Beach and in Fort Worth.

There are a few slots left in these sites — register now!

Over 1,000 people (caregivers, advocates, elected officials, family members, and adults with autism) will join the discussion to make recommendations on these important issues. The event will be orchestrated from a central hub in Chicago, and a webcast will allow us to hear ideas from participants at satellite sites all over the country.

The unprecedented scale and diversity of the AFAA Town Meeting will attract national attention and build momentum around addressing the needs of adults with autism.

Easter Seals is hosting the satellite sites in Long Beach and in Fort Worth.

Sign up now to be part of Advancing the Future of Adults with Autism. Be part of the solution. Ensure adults with autism have the quality of life that all citizens deserve!

Jim Williams, president and chief executive officer of Easter Seals, said, “Transportation is literally the link to schools, the work place, and every other destination in community life.”

Employment, recreation, education … accessing all of these experiences require transportation. One thing the group could agree on is that the current public transportation system has many barriers. Inaccessible fixed route systems, limited para-transit and a complete lack of resources in rural areas were all mentioned.

The people at this event were focused on solutions. Solutions such as incorporating transportation education into high school curriculum standards, providing sensitivity training to public transportation operators, and promoting self-advocacy skills throughout a student’s years in special education.

The conversation at the roundtable was just the beginning. This group and others will continue to work towards ensuring that youth with disabilities have the transportation they need to lead the lives they deserve.

We started the day off with a tour of the White House. About 200 Easter Seals staff and volunteers got to take advantage of this rare opportunity!

Then we met with members of Congress for our home state of Wisconsin — Senators Kohl and Feingold, and Representatives Kagen, Sensenbrenner and Moore. We had a half-hour with Sen. Kohl discussing health care and long term care. We were pleased to find all the members we met with agreed with ending pre-existing conditions as a major policy goal for people living with disabilities. Each office told us they agree on 80% of the issues involved. Rep. Kagen is a doctor and is following this issue closely. We even got a fist bump from him for the work done at Easter Seals!

As an organization, we were pleased to hear the praise from all our visits about the work done by Easter Seals. This year, Easter Seals Southeast Wisconsin is investing $100,000 to start to a new Applied Behavioral Analysis (ABA) program for children with disabilities. Annually, we raise over $100,000 to cover shortfalls in our Birth-to-4 program. Each person we met with knew Easter Seals is a vital piece of the network in providing community supports for children and adults with disabilities.

But one day of staff and volunteers in D.C. is not going to get the job done. One office told us the people back home need to weigh in.

It’s not too late to keep calling, mailing and emailing your thoughts. It helps in guiding policy and letting members know what people back home are thinking. There are concerns within any of the current bills that can affect those living with disabilities, their care and their supports. Many people living with disabilities have long term health conditions and will be impacted directly by the changes in our health care system.

So … stay tuned and stay involved!

We’ll be visiting our legislators and asking them to support health care legislation that includes:

• Coverage for pre-existing conditions, guaranteed coverage renewal, and no annual or lifetime caps.
• Benefits like rehabilitative and habilitative services, medical equipment and devices, and mental health services.
• Affordability provisions, so that all people, including those with disabilities, can receive the health care they need to live, learn, work, and play in their communities.

Send a message to Congress voicing your support, and help reinforce Easter Seals’ message as we head to Capitol Hill to meet with legislators.

And make sure you get our updates during our Capitol Hill Day! Join us on Facebook and Twitter. And if you’re already on Twitter, help us spread the word by tweeting about Easter Seals Capitol Hill Day by using the #CapHill09 hashtag.

Together, I know we can make our message to Congress heard loud and clear!

At a time when “celebrity rules” and the only “ordinary” people we see are faces in the crowd, The Story reminds listeners that their stories and their lives matter. We believe that by creating a space for first person stories we are choosing not to accept a pollster’s version of our thoughts and attitudes.

The Story originates on North Carolina Public Radio, so Dick Gordon, the show’s host, was in Chapel Hill during Friday’s interview. Me? I sat alone with my Seeing Eye dog Hanni in a recording booth in Evanston, Illinois. The sound man, seated in another room behind a plate of glass, says if you listen carefully you’ll hear Hanni’s harness jiggle as she settles in at the beginning of the taping. She slept for the rest of the hour. She’d heard this all before.

The interview questions centered on my working life. I lost my sight in 1985. The Americans with Disabilities Act wouldn’t be signed into law until five years later. When I lost my sight, I lost my job. Worse than that, I lost my self-confidence. It took a while for me to get the gumption to apply for work again, but once I did I met up with some pretty wonderful, flexible employers. A series of part-time jobs helped rebuild my confidence back. Today I’m a published author, a teacher, and … a blog moderator!

If you read my blog post about a speech Sen. Richard Durbin (D-IL), gave on hiring people with autism and other disabilities, you know he mentioned a recent DePaul University study on the costs and benefits of employing people with disabilities. Durbin used the study to remind his audience that people with autism and other disabilities make very loyal employees.

This is what the study found: on their annual performance reviews, employees with disabilities rated slightly higher than their co-workers without disabilities. Employees with disabilities took fewer scheduled and unscheduled days off work — just the opposite of what many might assume.

In addition, the average cost of accommodating the workers with disabilities — modifying the workplace to meet their needs — was $313. As investments in good, dependable workers go, that’s a bargain.

I wasn’t savvy enough to refer to research studies when they taped my interview for The Story, but I hope the spirit of that study shines through when the show airs. The Story is distributed nationally by American Public Media. It can be heard in North Carolina on WUNC-FM and WRQM-FM (90.9) in Rocky Mount. The show can also be heard on other stations across the U.S. including WBEZ in Chicago and KPCC in Los Angeles. I’m not sure yet when my particular segment will air, so stay tuned — I’ll let you know as soon as I find out.

In the meantime, take a look at a post called Disability Employment Awareness in the News on the Justice for All Activist Blog. The post has a nice round-up of articles about disability employment awareness that have already been published this month.

A publication in Pediatrics indicates that 1 in 91 children between the ages of 3 and 17 has an autism spectrum disorder. The story in Pediatrics came out of a report from the National Survey of Children’s Health, and it indicates a clear increase from the 2007 research that found as many as 1 in 150 children had an autism spectrum disorder.

The news of this increase has many people asking why. As for me, I am asking what. What will we do to meet the increased need for services? What will we do to meet the increased need for supports?

Surveillance studies are important. They inform our society about what is happening to our population, and they should inform our society about the needs of our society members. Every day Easter Seals hears from parents who are not able to access services and supports for their children. The two barriers I hear about most often from families are financial barriers and the lack of trained professionals in their communities.

Individuals with autism can and do lead meaningful lives with effective services and supports. Increased prevalence equals increased need. The research has been done. We know that there are more children with autism. This must lead to the logical conclusion that there are more children in need of services and supports.

Remove the barriers to effective services and supports. Our professionals (teachers, childcare workers and therapists) need access to training. Our families need financial support to ensure their children receive quality treatment. Our society funded the prevalence study to find out about how many children have autism. Let us now fund services and supports to meet the needs of those we found.

Roger lost his legs in a boating accident in 1975, and he took that personal tragedy and turned it into a career as an advocate for people with disabilities. He was a delegate for Easter Seals Michigan and served on Easter Seals Michigan’s Board of Directors. He was also an active member of the Paralyzed Veterans of America, the Rehabilitation Institute of Michigan, the Paralympics Games and the Michigan Athletes with Disabilities Hall of Fame.

Our blogger Matt McAlear met McCarville after the TV host came to Easter Seals Bay Area to interview them about their Early Intervention Autism Project. The show aired in twelve different markets this summer. Easter Seals Bay Area has been receiving calls, emails, kudos, and support ever since the show aired on PBS, and subsequentlyon YouTube. From Matt’s blog post :

Throughout the day, both on and off camera, Roger went beyond the typical interview questions. He made a genuine effort to connect with each of us individually. Roger kept us laughing all day, and he was a pleasure to work with. He was truly interested in the work we do and the individuals we serve everyday through the Early Intervention Autism Project.

Roger McCarville was truly one-of-a-kind. He will be missed.